So...to follow up my last post on interesting comments read and/or heard in the media...
A couple of weeks ago, I found myself abnormally home on a Sunday evening. Being a Core Team member for my parish's Life Teen program, my Sunday nights are usually booked until about 9 PM with our meeting, Mass and then the Life Night. The first weekend of November, however, we took 20 teens to the High School Youth Convention (fabulous!) and we did not have a Life Night that evening. So I'm at home and
60 Minutes is on TV.
The last story in the show featured an interesting technology being developed for people who are completely paralyzed, usually only able to move their eyes. This condition is termed
Locked In Syndrome and can result from degnerative conditions, or massive strokes affecting the brainstem. The main player in this story was a neuroscientist who was diagnosed with
Amyotrophic Lateral Sclerosis (ALS, or Lou Gehrig's Disease). This disease is degenerating, causing progressive loss of muscle control and eventually death. Initially he had stated that he did not want to be kept alive when he would become ventilator-dependent but had changed his mind due to this technology and now does depend on a ventilator to breathe and has progressed to the point of having Locked In Syndrome. Via electrodes in a cap that is placed over the skull, the patient can use their thoughts to control pointers or a mouse on the computer screen and use software to "read", record and playback text that they have painstakingly typed by moving the pointer from letter to letter. There is even in the works the possibility of implanting electrodes into the brain and controlling wheelchairs and robotic limbs. The technology is fascinating and I thought the story did an interesting job of highlighting that despite severe disabilities, people with Locked In Syndrome are functioning, thinking,
alive human beings. And then...this line happened:
"[The neuroscientist's] skull cap interface is a machine that has given him back his humanity"
Hold on...what was that? When the reporter gave this line, it literally left me cold. What happens to his "humanity" when he's not wearing that skull cap? Is it any less present? This scientist, despite only being able to move a few muscles in his face, being completely dependent in his care, still goes to work and does research. His mind is alive and active, the gift present here is that of communication. I don't pretend that the ramifications of that gift aren't huge...the ability to communicate with those around us are of incredible importance and can make a vast difference in a person's life and well-being. What affected me more was the subtle meaning hidden in that line, perhaps so well hidden that the person saying it didn't even realize what it could mean. We as a culture continue to espouse and promote the idea that people only have worth when they are able to do and contribute. We are raised from a young age to believe that it's all about doing it ourselves, being number one, being independent. Then, when that ability is taken away, we find ourselves at a loss and we feel we are no longer worth anything. This is vastly different from other cultures in which we contribute to the well being of the group (family, kin, friends) and know that the group is there for us when we are no longer able to help ourselves.
I find that I struggle with this myself..as a student of physical therapy, my future career will depend on helping people regain their independence, and I do think that is incredibly important. This can be a gift too, however, because it helps you see that no matter what has happened to a person, they are still a person who usually wants nothing more than to live a full life again. The deeper realization we must come to is in understanding that our worth doesn't ever come from anything we can ever do.
"So God created humankind in his image,in the image of God he created them; male and female he created them." Genesis 1:27
We are made in God's image and that gives us an inherent dignity that can never be stripped from us. However, that understanding is under attack and is being danced around and glossed over. Sadly, I live in a state that just became the second in the nation to allow Physician-Assisted Suicide, by the vote of the people, and I fear we are headed down the slippery slope. We must never be afraid to know that life is life always, and a person's humanity is a beautiful gift from God that we must cherish, and that nothing that we do, or that happens can take it away.